Many families find the support of Childrens' Hospices invaluable. If you are preparing for the birth of a baby with one of these syndromes, or care for a baby or child, there may be a Children's Hospice in your area providing 'home from home' support.
Find support in your area - including hospice and respite care services - on the Together for Short Lives website.
Children's Hospice Association Scotland (CHAS) is a charity that provides the only hospice services in Scotland for children and young people who have life-shortening conditions for which there is no known cure. CHAS runs two children’s hospices and a home care service called CHAS at Home.