Caring for someone with trisomy 13 or trisomy 18 can put a strain on family finances.
Find out more about benefits and grants to which you may be entitled.
Recent research by Contact a Family suggests that families with disabled children are more at risk of getting into debt as it costs more to raise a child with additional needs. Many families are having to go without the basics of food and heating as they struggle to make ends meet. Here's more information on the social welfare payments to which you may be entitled.
Some funding resources for children with disabilities and/or life-limiting conditions.
Many parents and carers are deeply concerned that decisions are being taken to cut services for disabled children and their families.