What Support is Available?
Before SOFT UK was set-up in 1991, most families didn't know where to turn when they received a diagnosis of trisomy 13 or trisomy 18. Their experience of trisomy was hugely isolating and they felt completely alone. Today, there is range of places that you can turn to for support.
The support offered by the SOFT UK family support volunteers is a key part of how we help families - and we're here for you for as long as you need us. You may not feel able to talk to anyone about your experiences but, if you prefer, we can support you by email or text. Contact us.
Or perhaps you would prefer to turn to Facebook groups or reach out to other families after reading their personal blogs. We have listed a few but let us know of any other sources that you found especially helpful.