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Your Unborn Baby

Your Unborn Baby was written by SOFT UK to provide a basis for discussions between you and your medical advisers. It explores the issues confronting parents after a prenatal diagnosis of trisomy 13 (Patau's syndrome) or trisomy 18 (Edwards' syndrome). 

You won't find any recommendations for particular methods of treatment as these should always be done in consultation with your doctor and other clinicians. But you will find plenty of information to help you towards making informed choices for you and your family.

You can read a selection of chapters below or download a copy of the complete booklet. Contact SOFT if there is anything you would like to talk about.

Caring for a Baby with a Related Disorder

The outlook for a baby with other chromosomal abnormalities or a related disorder such as partial trisomy or mosaicism may be much more hopeful than that of a baby with the full trisomy 13 or 18 depending on the precise nature of the defect, and the professional opinion of a clinical geneticist must be sought.

Bereavement

No two people react in exactly the same way to the death of a loved one, or to the diagnosis that their baby is going to be anything but perfect. Parents want their child to be healthy and the knowledge that a baby has a serious chromosome defect is devastating.

How Brothers and Sisters are Affected

Every year thousands of children face bereavement through the death of a grandparent, parent, sibling or friend. When someone dies, adults are understandably so engrossed in their own grief that children's grief may be unnoticed. However, the way in which children are helped when sad things happen may have a profound effect on how they are able to adapt to loss and change throughout their lives.

A New Baby

Parents worry about the health of future children, and another pregnancy is an anxious as well as happy time. There is no right time to get pregnant,and for some people healing and the return of confidence comes much sooner than for others. Parents must decide according to their own individual circumstances.