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See the film of the 2015 NI family day
A lovely film from this year's family day in Northern Ireland. Join us at the next one in 2017.
Jenny and Chris are compiling a 20 page Anniversary Booklet that will be printed and given to those attending the Family Weekend. If you would like a photo and a paragraph about your family/ SOFT UK (about 130 words) included in the Booklet please email to: firstname.lastname@example.org subject: SOFT UK. Please can the photo be above 50kb and under 10mb, preferably unedited as we will crop as necessary.
Meghan Linscott, Trainee Health Psychologist at the University of Derby, is exploring how parents cope psychologically when their child receives a diagnosis of trisomy 18. Meghan is surveying parents who have, or have had, a child born with full, mosaic or partial Edwards Syndrome (Trisomy 18). Link to the survey.
11/07/16 Applications are now closed
SOFT UK employs only one paid member of staff, our Charity Administrator. The current post holder is leaving after over 3 years working with us so we are seeking an enthusiastic individual with good organisational and administrative skills and experience to take on the role.
In September 2015, Dan Holmes will be making the leap for SOFT in memory of Evie Scott. Dan is neither a keen flyer nor a seasoned parachutist but he wanted to take on this personal challenge in support of close friends. You can find out more and give to Dan online.
We've just been told that SOFT has won a place on next year's Virgin London Marathon - taking place on Sun 24th April 2016. We'll be drawing one name out of the hat on Monday 27th July. If you're willing to commit to a fundraising target of £2000 (and you're happy to use Virgin Money Giving to set up your online fundraising page), then send an email to Kirsty by midnight on 26th July. Good luck!
We can't explain how grateful we are to Syco and Together for Short Lives for the recent donation of over £13,000 (£13,409 to be precise). Thank you!