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News Archive

Carers Week 2014

Carers Week runs from 9-15 June to celebrate and recognise the contribution of all of the UK's 6.5m unpaid carers. Visit the Carers Week website to find an event near you.

Survey on food in Scottish hospitals

Action for Sick Children Scotland (ASCS) is seeking the views of Parents and Carers, whose children have had one or more stays in a Scottish NHS hospital during the last 3 years. For more info and the link. Survey closes 26 June. 

Screening consultation

Give us your views on first trimester screening for T13/T18. More info here. And read the latest NHS FASP newsletter here.

Children's Art Competition

For Trisomy Awareness Month (and after) we are running an art comp for kids. Closing date is 31 May.

50's Vintage Ball

Don't miss out on the 50's vintage theme ball taking place on 7th June at Wood Norton Hall Hotel, Evesham - in memory of Ayla Hope Reading.

Bolt the Holt

Thanks to Steve and Matthew for taking part in this event on 5 April, to raise funds for Diabetes UK and SOFT.

Health Engagement Survey

Mencap, the National Autistic Society, Scope and Sense are looking into experiences of people with a disability using new health organisations like NHS England and Healthwatch. They need your help and to hear about your experiences to write their report. https://www.surveymonkey.com/s/surveyhealth

SOFT goes to Blackpool

This year's conference will be in Blackpool on Sat 3rd May, agenda and online booking form here. Book overnight rooms direct with the hotel (just mention SOFT when booking) - tel 01253 628966, speak to Neha.

UK National Strategy for Rare Diseases

Earl Howe recently announced the launch of the UK National Strategy for Rare Diseases. The 4 health departments of the UK will announce their implementation intentions in Feb 2014. Watch this space!

SS14 newsletter

The deadline for submissions has passed - newsletters will be sent out to members in mid-April.