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Information and Support
For Families affected by Trisomy 13, 18 and related conditions

Latest News & Events

SOFT UK Christmas Appeal

10/12/2018
Give a little back this Christmas....... Christmas is a time of giving, a time to celebrate our lov...

SOFT UK Christmas Cards

12/11/2018
We have a small number of packs of our popular SOFT UK Christmas Cards left over from last year! ...

Living with Cali Update

10/12/2018
The next installment of our popular Blog 'Living with Cali' is up over at http://www.soft.org.uk/liv...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).



Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.