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Help For Families
Support and help with families affected by Trisomy 13 and 18

Latest News & Events

SOFT UK Race Team Announcement

08/10/2018
SOFT UK announce successful candidate for VirginMoney London Marathon 2019 SOFT UK were fantastical...

Scotland Family Day 2018

01/10/2018
    On Saturday 29th September, Trustee and Scotland Coordinator Liz Egan welcomed our...

SOFT UK & Jeans for Genes

26/09/2018
SOFT UK Trustee Alison Pearson spoke to Heart Radio, to publicise the work of SOFT UK, as part of th...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).

Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.