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Information and Support
For Families affected by Trisomy 13, 18 and related conditions

Latest News & Events

Baby Loss Awareness Week

08/10/2019
SOFT UK is proud to be a member of the Baby Loss Awareness Week Alliance 2019.  From 9th-15th O...

SOFT Northern Ireland Family Day 2019

07/10/2019
On Saturday 5th October we were delighted to return to Northern Ireland, for the first time in 6 yea...

SOFT UK Family Meets

15/07/2019
Families in the South West took advantage of the new SOFT UK Family Meetings to meet together in Bri...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).




Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.