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Information and Support
For Families affected by Trisomy 13, 18 and related conditions

Latest News & Events

SOFT UK Family Meetings

15/07/2019
SOFT UK is committed to providing opportunities to link families affected by Edwards’ or Patau...

Making a Regular Donation to SOFT UK!

07/11/2018
One of the things families ask us most often is how they can help SOFT UK! Many people want to give...

Language Matters

05/06/2019
SOFT UK Trustee Alison Pearson blogs for Public Health England  Alison was one of 2 mums asked...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).




Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.