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Information and Support
For Families affected by Trisomy 13, 18 and related conditions

Latest News & Events

Campaigning success for Together for Short Lives

09/01/2019
Together for Short Lives are celebrating the success of their campaign to improve resources for Chil...

SOFT UK Annual Awards 2019

09/01/2019
SOFT UK is delighted to invite our members to once again nominate for our Annual Awards for 2019. W...

SOFT UK Christmas Appeal

10/12/2018
Give a little back this Christmas....... Christmas is a time of giving, a time to celebrate our lov...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).



Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.