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Information and Support
For Families affected by Trisomy 13, 18 and related conditions

Latest News & Events

SOFT UK Join Wonderful

11/02/2019
Following the announcement about the closure of BTMyDonate, our fundraising platform provider, we we...

Winter Newsletter

01/02/2019
I hope you are all surviving this wintry weather!  If you're staying inside out of the cold, t...

Genetic Alliance Guest Blog

30/01/2019
This week SOFT UK is featured on Genetic Alliance UK's guest blog.   Trustee Gareth Glendinnin...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).



Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.