Soft.org Facebook Soft.org Twitter Soft.org Instagram
Soft.org Facebook Soft.org Twitter Soft.org Instagram
SUPPORT DONATE

Telephone: 07731651970:

enquiries@soft.org.uk

Information and Support
For Families affected by Trisomy 13, 18 and related conditions

Latest News & Events

Scotland Family Day 2019

17/09/2019
The sun was shining for our annual Scottish Family Event on 14th September 2019. Ten families attend...

Family Day 2019

04/03/2019
SOFT UK held its 2019 annual family day at the Marriott, Northampton on May 11, with Family Stories ...

SOFT UK Annual Awards Winners

26/08/2019
This year we received many nominations for our Annual Awards scheme. The SOFT UK Annual Awards recog...
View All News

About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).




Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.