Help For Families
Support and help with families affected by Trisomy 13 and 18

Latest News & Events

World Birth Defects Day 2019

12/09/2018
SOFT UK has signed up as a partner to World Birth Defects Day 2019.  World Birth Defects day h...

Summer Newsletter

27/08/2018
After the longest wait in history, the SOFT UK Newsletter is finally here! Its absolutely packed fu...

Scotland Family Day 2018

27/08/2018
The Scottish Family Day will take place on Saturday 29th September at the Glynhill Hotel, Renfrewshi...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).

Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.