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Information and Support
For Families affected by Trisomy 13, 18 and related conditions

Latest News & Events

Research Project Results Are In

19/08/2019
    PHD Student, Helen Foster-Collins, undertook a piece of research to try to better un...

New Arrivals

12/08/2019
SOFT UK welcomes new Rainbow Babies   Sonia and Sandeep Sankoli welcomed Jovin on 31 st May, ...

SOFT UK Family Meetings

15/07/2019
SOFT UK is committed to providing opportunities to link families affected by Edwards’ or Patau...
View All News

About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).




Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.