Introducing ‘Sing for SOFT’, our 2023 Family days fundraiser.

SOFT UK is a UK wide charity that provides information and support to families affected by Trisomy 13, Trisomy 18 and related conditions. We provide support at all stages of a family’s journey; expecting a baby, caring for a child, ending a pregnancy, coping with bereavement and beyond.

After almost a year, the NHS has published a video to support expectant parents facing a diagnosis of Edwards' syndrome. The video was created in collaboration with SOFT UK, and we are incredibly thankful to our community who helped to make this a reality. The project began when it was identified that there was a lack of information being made available to expectant parents. The aim was to create a video that talked about different families journeys and experiences, providing a more human insight into a pregnancy affected by Trisomy 18.

SOFT UK is part of the network of TFMR specific organisations, charities and support spaces that are safe for the TFMR community. We stand with TFMR families to show our love and support. Help is available via our support team by calling 0300 102 7638 Monday to Friday or emailing support@soft.org.uk.