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Information and Support
For Families affected by Trisomy 13, 18 and related conditions

Latest News & Events

Trisomy Families asked to contribute to OurCovidVoices

The aim of #OurCovidVoices is to be a first draft of the nation's #COVID 19 history, written by peop...

New Research Study looking for Adult Participants with Full Trisomy 13

Dr Amy Lebedoff is looking for participants for her study Survey of Adults with Full Trisomy 13.&nbs...

TwoPointSixChallenge Raise funds for SOFT UK

SOFT UK is excited to announce that we are joining the #TwoPointSixChallenge to help save the UK's c...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).

What is Trisomy?
Support for families
Living with Cali

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Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.