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Information and Support
For Families affected by Trisomy 13, 18 and related conditions

Latest News & Events

Be the Change!

30/03/2020
SOFT UK is a small charity which supports families affected by the rare genetic conditions Trisomy 1...

New SOFT UK Professional Adviser

27/03/2020
SOFT UK are absolutely delighted to welcome Deborah Bruns from the TRIS Project to the team as our n...

SOFT UK Events Covid 19 Update

16/03/2020
SOFT UK regret to announce that we have taken the decision to cancel our Family Day on 30th May. In ...
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About Soft UK

SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support. 

Our information is evidence-based and prepared in collaboration with our professional advisers. It is always given to complement the advice of the clinicians who work with individual families.

We do not offer medical advice and at all times we respect the relationship between families and their medical professionals.

SOFT UK is a registered charity no. 1002918 (England and Wales) | no. SC043341 (Scotland).




Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.