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RAREFest 2020

13/10/2020
RAREfest20: Global, virtual festival puts rare diseases into the spotlight! Despite the fact rare d...

Research Interview- Initiation of Paediatric Advance Care Planning

07/10/2020
Calling all Parents!  Research Interview: Exploring parents experience and perspectives of the...

Loss Books

15/09/2020
  As parents, we make every effort to shield our children from the pain of grieving and loss. ...
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