SOFT UK Advisers

At SOFT UK, we are fortunate to work alongside dedicated advisers whose expertise and commitment are essential to our mission of supporting families affected by trisomy 13, trisomy 18, and related conditions. Our advisers are leaders in their fields and compassionate individuals passionate about making a meaningful difference for these families.

Our advisers play a pivotal role in shaping SOFT UK's materials and training resources, offering invaluable feedback and insights that ensure our resources remain informative and relevant to our community.

We are incredibly grateful for our advisers’ commitment and expertise to SOFT UK. Their contributions are integral to our organisation's success and to the support we provide for families facing complex challenges.

Here is a list of our dedicated advisers:

Alison Brett
Bereavement Midwife, Ipswich Hospital, Suffolk

Dr Alison Pearson
Freelance education consultant and trainer; PhD student in Education; mother to Isabel with trisomy 18

Barbara Rosenthal, MBACP
Counsellor in private practice; Trainer and Supervisor, Cruse Bereavement Care

Daniella Robbins
GP with a connection to SOFT UK through the loss of her sister to trisomy 13

Deborah Bruns, PhD
Principal Investigator, Tracking Rare Incidence Syndromes (TRIS) Project; Professor, School of Education, Southern Illinois University, USA

Erica Brown
Vice President, Acorns Children’s Hospices, West Midlands; Research Fellow in Children and Young People's Palliative Care, Coventry University

Jenny Hudson, BSc (Hons)
Chiropractor, PGDip Clinical Biomechanics, IBCLC in private practice, The Village Chiropractic Clinic, Uttoxeter

Professor Joan Morris
Professor of Medical Statistics, Primary Investigator on the EUROlinkCAT Study, St George’s University, London

Dr Lucy Kean
Consultant Obstetrician, Head of Service, Fetal Medicine and Maternal Medicine, Nottingham University Hospitals

Dr Nora Shannon
Consultant Clinical Geneticist, Nottingham City Hospital

Professor Nick Embleton
Consultant Neonatal Paediatrician, Newcastle University

Dr Una MacFadyen
Consultant Paediatrician and Neonatologist, Forth Valley Royal Hospital

To read more on our Advisors take a look at their blog posts to give you an insight to how they have been involved with SOFT UK.