My daughter Heidi was diagnosed with Full Trisomy 18 when I was 14 weeks pregnant and was born two weeks before her due date in April 2020. Sadly, she only lived for 3 ½ precious hours but my husband and I discovered that there was joy, hope and meaning in her life even though it was very short. I am a huge supporter of the work that SOFT UK does to educate medical professionals about Trisomy. I am also passionate about helping other families as they walk this difficult path by directing them to the advice and information they need as well as also supporting families who are looking after their beautiful children who are living with Trisomy.