Lily-Rose

My daughter Lily-Rose was born in July 2013. She was diagnosed with Trisomy 13 post natally at 10 days old.

She has low set ears and rocker bottom feet amongst other things. She is button fed and it’s making modest progress in several areas.

She is a very happy, smiley, sociable little girl. She is at school full time now and she really enjoys it and likes going.