In June 2020 my first child Cillian was diagnosed with trisomy 13. I was 31 weeks pregnant. Sadly, our angel was born sleeping five days after our diagnosis. I’m from Northern Ireland and the hospital didn’t give me any information about SOFT but I came across them myself. Speaking with other bereaved parents gave me the most incredible comfort and support and I am so happy to be able to help others. It is the most beautiful way to honour my son, keep his memory alive and be there for other parents. I made him a promise I would make him proud and I can’t think of a better way to do it.