In 2006 we contacted SOFT UK because we found out during our pregnancy that our daughter had Trisomy 18. Her name was Charlotte and she lived for six months. During the pregnancy and afterwards we received support from SOFT UK. The following year we ended another pregnancy due to severe brain abnormalities. We named her Jackie. I became involved with SOFT as a support volunteer in 2010 supporting families who had been affected by Trisomy 18 and Trisomy 13. In 2011 I joined the board of trustees and work with support volunteers and supporting families.