Learning from Lived Experiences

This resource has been put together to summarise advice and suggestions from parents of children with trisomies 13 and 18.

To download the document, click here.

Advice and recommendations from families living with trisomy

You may want to consider technology such as an iPad, Xbox, switch or iPhone.

Some children enjoy LEGO.

“Take each day at a time…it’s a case of enabling [children with trisomy] rather than disabling them and letting their disability define who they are.  Go with your gut, you know (your) child!  While I say take each day at a time you also need to have in your mind what your future plans are ie education, supported living, etc.” 

In this picture, Anouk is standing in her supported standing frame, chewing on her best “chewy” and proudly showing her artwork.