Trisomy 13/18 Statistics

At SOFT UK we understand how important it is to have data to backup what we are talking about when interacting with professionals.

Currently, we are in the early stages of understanding our Trisomy community better, and you can help by filling in this very quick survey.

The information will be used for us to create a better understanding of those affected by Trisomy 13 and 18, and help to form the next stages of where our research should be focused.

Our long term goals are to create a robust set of statistics about the different areas of a Trisomy journey, right from diagnosis, to surviving children. This will help us to recognize areas where more resources and training are needed, but also allow us to better communicate with healthcare professionals, enabling us to back up our robust lived experience library, with valuable statistics.

You can find the form here: https://wkf.ms/469kLiq

Thank you for your help.