Trisomy Awareness Month 2025
As Trisomy Awareness Month kicks off for 2025, we wanted to share some of what we had planned at SOFT UK.
This year we are aiming to reach more people than ever before, to help raise awareness of Trisomy 13 and Trisomy 18. We will be sharing resources, stats, and quotes from our community throughout the month.
Group Calls
We will be hosting group calls on the 13th for families who have had an experience of Trisomy 13, and on the 18th for families who have had experience of Trisomy 18. These calls are a safe place for families to come together and talk with others, share their experience, and remember their children together. If you’d like an invite for either of these calls, please email shaun.dowdall@soft.org.uk
Live With SOFT UK
We will be hosting our Live With SOFT UK during March, which is an opportunity for the community to come together and chat in the comments as members from the central team will talk about what we’ve been up to, and what we have planned for the rest of the year. You’ll also get the chance to meet our new Engagement Officer! The date and time for this will be announced soon, so watch this space.
Quotes and Stories
We will be sharing quotes and stories from the community throughout the month. We know the power of sharing a lived experience, and how far reaching that can be. If you’d like to share your story, either written or on a podcast, then please get in contact with Sonia.sankoli@soft.org.uk The more stories we can share, the further our reach will be.
Fundraising
We will be setting up a fundraiser for Trisomy Awareness Month to help bring together any fundraising efforts taking place. If you are fundraising, then feel free to link your fundraiser to our JustGiving event.
This year, the funds raised by our incredible community are more important than ever. Our community day in May will be our biggest yet, consisting of two days. The first, on May 16th, is focused on offering a live training session to health care professionals, where they will hear from families and one of our professional advisors. The second day, on May 17th, will be for our community, consisting of more sessions then ever before. Funds raised will help us to facilitate these days, and more later in the year in Northern Ireland, Scotland, and Wales.
To find our fundraising page, click here: https://www.justgiving.com/campaign/tam2025
How You Can Help
The biggest way you can support us this month is by liking and sharing our posts. The engagement helps our content get in front of more eyes, and that’s the aim this month, to raise as much awareness as possible. Also, we’d love to hear from you! If you have a message to share, or photos, or anything about your own experience of Trisomy, then please let us know.
The more voices we have, the louder the message becomes.